LMBRD2 Association fights for an ultra-rare genetic disease that primarily affects children. With only 13 documented cases worldwide, our families face isolation, lack of medical recognition, and absence of dedicated research.
But we don’t give up. And we need you!
In the world of rare diseases, numbers matter. When facing health institutions, research organizations, and political decision-makers, an association with 500 members will always have more weight than one with 50 members.
Your membership, even passive, helps us to:
🔹 Obtain funding for research
🔹 Raise awareness in the medical world about this disease
🔹 Create momentum around our cause
🔹 Give hope to affected families
Prefer more discreet support? That’s just as precious! You:
🔸 Strengthen our numbers (essential for our credibility)
🔸 Receive our news and can share it around you
🔸 Participate when you want, without obligation
🔸 Help make our association known
Want to get concretely involved? Perfect! You can:
✅ Participate in our events
✅ Help us organize actions
✅ Share our messages on social media
✅ Create local initiatives
Everyone! You don’t need to be directly affected by the disease to support us.
🩺 Healthcare professionals who want to expand their knowledge
👨👩👧👦 Parents sensitive to causes for sick children
🤗 Caring citizens who believe in healthcare equality
🎓 Students in medicine or sciences
❤️ Anyone touched by our mission
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