Who We Are
Our website is operated by a non-profit organization dedicated to raising awareness and supporting research on the rare genetic disease LMBRD2.
Data Collection and Use
Comments
When you leave a comment, we collect the information provided in the comment form, as well as your IP address and browser type to help prevent spam. Your email address may be sent to Gravatar to check if you have a profile picture. Once approved, your profile picture will be visible alongside your comment.
Media
We recommend avoiding uploading images with location data (EXIF GPS), as visitors to the site can extract this information.
Cookies
Cookies are used to remember your information (name, email, website) when you leave a comment, making it easier for future comments. Login cookies last for two days, and display preference cookies last for a year.
Embedded Content
Articles on this site may include embedded content (videos, images, etc.) from other websites. These websites may collect data, use cookies, and monitor interactions with the embedded content, especially if you have an account and are logged in.
Data Retention
Comments and their metadata are retained indefinitely to help with follow-up approval. User profile information is kept until the user modifies or deletes it.
User Rights
You have the right to access, modify, or delete your personal data. To do so, you can contact us through the contact form on our website.
Data Sharing
We only share your data with service providers necessary for managing our site or if required by law. We do not send your data to third parties for commercial purposes.
Data Security
We implement security measures to protect your personal data from unauthorized access, loss, or misuse.
Data Breaches
In the event of a data breach, we are committed to notifying you promptly and taking appropriate actions to resolve the issue.
Contact
For any questions regarding your personal data, please contact us via the contact form.
